The Claire Altman Heine Foundation, Inc. is a 501(c)3 tax exempt organization and a publicly supported charity as determined by the Internal Revenue Service. The Foundation was created in memory of our daughter, Claire, whose life was claimed by Spinal Muscular Atrophy (SMA). SMA is the number one genetic killer of children under two. SMA is a devastating and relatively common children's genetic disease. One in every 6, 000 babies is born with SMA, two babies each day in the United States. While other organizations are working hard to find a treatment or cure, the Claire Altman Heine Foundation uses its funding to identify carriers of SMA, support population-based SMA carrier screening, raise awareness of SMA and educate the public and medical communities about SMA.

Board of Directors

Advisory Council

Scientific & Medical Advisory Board